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My Name Is NOT Cancer

Free Seminar: Food pleasure, altered eating and well-being

We thought that this event run by the Centre for Public Policy and Health (Durham University) may be of interest to you:

14th September 2016, 13:00 to 15:00, Gala Theatre & Cinema, Durham

Eating is undoubtedly one of life’s great pleasures. Yet it is denied many people living with long-term eating difficulties as a result of illness, treatment or life-course transitions. This seminar reports on new research on “altered eating”, and the ‘science of deliciousness’.

The seminar will include audience participation to explore flavour and taste and, via film and discussion, findings from a National Institute for Health Research-funded project with survivors of head and neck cancer– Resources for Living – on living with altered eating.

Head and neck cancer survivors experience some of the most complex eating difficulties of all patient groups. For the Resources for Living research, survivors worked from the outset in close collaboration with researchers to develop a new way of assessing and managing the loss of pleasure, and burden, of eating.

The seminar marks the first step in expanding the scope of our findings to other groups. It will be of interest to anyone with chronic eating difficulties or people working with them, and to anyone interested in why food, flavour and deliciousness matter to health and well-being.

This event is free of charge and everyone is welcome to attend so please do share within your networks and with family and friends!

Presenters on the day include:

  • Professor Barry C. Smith: Masterchef supertaster, Director of the Institute of Philosophy (IP), and founder of the Centre for the Study of the Senses (CenSes).
  • Dr Vincent Deary: Author of the Amazon best-seller trilogy How To Live, How We Are. A health psychologist who explores the power of habit and the difficulty of change.
  • Dr Duika L.Burges Watson: Lecturer in the Evaluation of Policy Interventions, Principal Investigator on the RfPB/NIHR Resources for Living project and social entrepreneur.
  • Mrs Val Bryant: Lead survivor participant on the Resources for Living project
  • Mr Sam Storey: Research Chef on the Resources for Living project, and collaborator on the North East’s Eat! Festival and Festival of Thrift.
  • Mr Mike Mould: Founder of the Bruvvers Community Theatre Company and Lime Street Studios, and survivor of head and neck cancer.

Click HERE to reserve your place

Accountants count the success of charity golf day by helping thousands of cancer patients

Leading Chester accountancy practice Ellis & Co Chartered Accountants and Business Advisers is celebrating after raising £400 at its charity golf day in support of thousands of cancer patients.

The kind-hearted donation from the Northgate Street accountancy firm means that 4,000 new inspirational leaflets will now be published by not-for-profit organisation ‘My Name Is Not Cancer (MNINC)’.

The leaflet is distributed to hospitals across the North West, in other parts of the UK and overseas, providing cancer patients and their families, friends and carers with helpful advice on how to cope with the illness

The MNINC Publication (contact us for more information on how to obtain your copy) contains poetry and literature and was written and inspired by Megan Fletcher who died of Refractory Hodgkins Lymphoma aged just 21.

Megan’s mum, Fiona, established MNINC in memory of her daughter (see History) and the organisation has since grown from strength to strength with recent plans emerging for a shared partnership with NHS REALSHARE.

REALSHARE is a new social network for young people with cancer aged 16-25 who live in the South West. It’s been created by a group of professionals who deal with young people with cancer, along with some of those young people themselves.

The site is sponsored by the Youth Cancer Trust, with support from a number of other organisations including the ASWCS NHS Cancer Network and the Teenage Cancer Trust.

Robert Ellis, the Director at Ellis and Co, said: “The team’s delighted to support MNINC for the fifth consecutive year of our charity golf tournaments, especially as it enters into the next exciting phase of its partnership with REALSHARE.

“We’re thrilled to learn that the MNINC Publication is being endorsed by the NHS and is being made so widely available to cancer patients across the UK.”

The leaflet puts a human face on cancer and empowers people to be themselves when facing the difficult challenges they encounter. It also provides an important line of communication between patients, their healthcare providers, families, friends and support services.  

CEO receives generous donation from Ellis & Co Accountants charity golf dayFiona said: “We’re truly grateful for the ongoing support provided by Ellis & Co over the years which has given me the confidence to keep growing the organisation and touch so many lives.

“It is particularly poignant to be teaming up with NHS REALSHARE as Megan would have been 27 this year and had she survived she would have needed ongoing support.

“My Name is NOT Cancer as part of Realshare for patients 25-30 will help continue the support already offered by NHS Realshare to young adults affected  by childhood cancer, understanding that the issues and fears young people face having been affected by a childhood cancer continue into adulthood.

“NHS Realshare provides forums (where members can share information, ask questions, or just chat with other people in a similar position to themselves), and information on things members might find useful such as an introduction to the treatment centres in the region, where to find support, and in future, articles on subjects relevant to members such as treatments and dealing with symptoms – it is a fabulous resource!”   

Megan was diagnosed with Hodgkin’s Lymphoma aged 20 while studying human biosciences at Plymouth University. She wrote the leaflet after a fruitless search for any kind of support that would encourage her to be herself.

Fiona Fletcher, CEO of MNINC (and Megan’s mother) later discovered her daughter’s work and published it so it would go on to help others.

She now runs the organisation based in Wrexham and My Name Is NOT Cancer has an active online presence on social media (see facebook) as well as being available in a number of medical organisations throughout the UK and Middle East.

The donation from Ellis and Co will directly benefit people across the North West.

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